Post by kickingfrog on Oct 23, 2016 8:50:28 GMT
NICE Guidelines 2016
...Stakeholders were also invited to respond to the following statement specific
questions:
5. For draft quality statement 2: Is it reasonable to suggest that an endoscopic
intestinal biopsy should be carried out within 6 weeks of referral to ensure that
people have a time limit for continuing with a gluten containing diet?
6. For draft quality statement 4: Are people with coeliac disease currently being
informed about the gluten-free foods available on prescription? Please explain your
answer...
....
5.3 Draft statement 3
People diagnosed with coeliac disease are given advice about a gluten free diet by a
healthcare professional with specialist knowledge of coeliac disease.
Consultation comments
Stakeholders made the following comments in relation to draft statement 3:
A stakeholder indicated that it is incorrect to state that a gluten-free diet is the only
treatment for coeliac disease in the rationale as there are other treatments.
It was suggested that although a gluten-free diet diet usually helps with managing
the condition it is not a treatment.
There was a suggestion that ‘information on which types of food are naturally
gluten-free’ should be added to the definition of ‘Advice about a gluten-free diet’.
It was suggested that an equality and diversity consideration should be added to
ensure healthcare professionals take the increased cost and variable availability
of gluten-free foods into consideration when giving advice to people on low or
fixed incomes and/or with poor mobility or limited transport options...
...5.4 Draft statement 4
People diagnosed with coeliac disease are informed about the gluten free foods
available on prescription.
Consultation comments
Stakeholders made the following comments in relation to draft statement 4:
There was a concern that the statement as it stands will not address the variability
in access to gluten-free food on prescription.
It was felt that the rationale should acknowledge that although gluten free foods
are still more expensive there is now a smaller price difference for some products
such as pasta, flour and biscuits.
It was suggested that it is important to acknowledge that there are local
prescribing formularies for gluten free foods.
It was suggested that the descriptors should emphasise the potential for
pharmacy led supply of gluten-free food and the role of community pharmacists in
providing information about gluten-free foods available on prescription.
There was a suggestion that the definition for gluten-free foods available on
prescription should be more precise.
It was mentioned that the equality and diversity statement needs to be clearer that
additional support is focused on advice on gluten free foods that people need on
prescription to maintain a healthy diet.
Consultation question 6
Stakeholders made the following comments in relation to consultation question 6:
Are people with coeliac disease currently being informed about the gluten-free foods
available on prescription?
A stakeholder indicated that every person with coeliac disease will be advised on
the availability of gluten-free foods on prescription at their initial dietetic
consultation; however, in some areas availability has been reduced or removed.
Information about gluten-free foods available on prescription is provided nationally
by Coeliac UK but information about local prescribing policies may be limited...
.........
www.nice.org.uk/guidance/QS134/documents/consultation-summary-report
...Stakeholders were also invited to respond to the following statement specific
questions:
5. For draft quality statement 2: Is it reasonable to suggest that an endoscopic
intestinal biopsy should be carried out within 6 weeks of referral to ensure that
people have a time limit for continuing with a gluten containing diet?
6. For draft quality statement 4: Are people with coeliac disease currently being
informed about the gluten-free foods available on prescription? Please explain your
answer...
....
5.3 Draft statement 3
People diagnosed with coeliac disease are given advice about a gluten free diet by a
healthcare professional with specialist knowledge of coeliac disease.
Consultation comments
Stakeholders made the following comments in relation to draft statement 3:
A stakeholder indicated that it is incorrect to state that a gluten-free diet is the only
treatment for coeliac disease in the rationale as there are other treatments.
It was suggested that although a gluten-free diet diet usually helps with managing
the condition it is not a treatment.
There was a suggestion that ‘information on which types of food are naturally
gluten-free’ should be added to the definition of ‘Advice about a gluten-free diet’.
It was suggested that an equality and diversity consideration should be added to
ensure healthcare professionals take the increased cost and variable availability
of gluten-free foods into consideration when giving advice to people on low or
fixed incomes and/or with poor mobility or limited transport options...
...5.4 Draft statement 4
People diagnosed with coeliac disease are informed about the gluten free foods
available on prescription.
Consultation comments
Stakeholders made the following comments in relation to draft statement 4:
There was a concern that the statement as it stands will not address the variability
in access to gluten-free food on prescription.
It was felt that the rationale should acknowledge that although gluten free foods
are still more expensive there is now a smaller price difference for some products
such as pasta, flour and biscuits.
It was suggested that it is important to acknowledge that there are local
prescribing formularies for gluten free foods.
It was suggested that the descriptors should emphasise the potential for
pharmacy led supply of gluten-free food and the role of community pharmacists in
providing information about gluten-free foods available on prescription.
There was a suggestion that the definition for gluten-free foods available on
prescription should be more precise.
It was mentioned that the equality and diversity statement needs to be clearer that
additional support is focused on advice on gluten free foods that people need on
prescription to maintain a healthy diet.
Consultation question 6
Stakeholders made the following comments in relation to consultation question 6:
Are people with coeliac disease currently being informed about the gluten-free foods
available on prescription?
A stakeholder indicated that every person with coeliac disease will be advised on
the availability of gluten-free foods on prescription at their initial dietetic
consultation; however, in some areas availability has been reduced or removed.
Information about gluten-free foods available on prescription is provided nationally
by Coeliac UK but information about local prescribing policies may be limited...
.........
www.nice.org.uk/guidance/QS134/documents/consultation-summary-report