Post by kickingfrog on Oct 21, 2011 8:52:34 GMT
Caring for a coeliac just got tougher
My daughter isn't fussy – she's ill. But her gluten-free food prescription has been cut by a callous and faceless PCT
Clare Radcox
The Guardian
guardian.co.uk, Thursday 31 March 2011
When our two-year-old daughter was diagnosed with coeliac disease just before Christmas, my relief bordered on euphoria. Diagnosis, following an endoscopy and biopsy, signalled an end to two years of watching Tilly waste away, physically and mentally. No further surgery. All we had to do was make sure she followed a gluten-free diet and she would start growing again.
Outwardly, I took exception when family and friends said "poor Tilly", cheerfully explaining how it was good news – especially in front of her and her sisters. But the more I read about the condition, the more I saw their point. So when we received a letter on Saturday from our primary care trust coolly explaining that prescription food for coeliacs was being slashed, I despaired....
www.guardian.co.uk/commentisfree/2011/mar/31/coeliac-gluten-free-prescriptions-cut
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My daughter isn't fussy – she's ill. But her gluten-free food prescription has been cut by a callous and faceless PCT
Clare Radcox
The Guardian
guardian.co.uk, Thursday 31 March 2011
When our two-year-old daughter was diagnosed with coeliac disease just before Christmas, my relief bordered on euphoria. Diagnosis, following an endoscopy and biopsy, signalled an end to two years of watching Tilly waste away, physically and mentally. No further surgery. All we had to do was make sure she followed a gluten-free diet and she would start growing again.
Outwardly, I took exception when family and friends said "poor Tilly", cheerfully explaining how it was good news – especially in front of her and her sisters. But the more I read about the condition, the more I saw their point. So when we received a letter on Saturday from our primary care trust coolly explaining that prescription food for coeliacs was being slashed, I despaired....
www.guardian.co.uk/commentisfree/2011/mar/31/coeliac-gluten-free-prescriptions-cut
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